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Patients' knowledge and attitudes regarding living with implantable electronic devices: results of a multicentre, multinational patient survey conducted by the European Heart Rhythm Association.

Identifieur interne : 000851 ( Main/Exploration ); précédent : 000850; suivant : 000852

Patients' knowledge and attitudes regarding living with implantable electronic devices: results of a multicentre, multinational patient survey conducted by the European Heart Rhythm Association.

Auteurs : Kristina Hermann Haugaa [Norvège] ; Tatjana S. Potpara [Serbie] ; Serge Boveda [France] ; Jean-Claude Deharo [France] ; Jian Chen [Norvège] ; Dan Dobreanu [Roumanie] ; Stefano Fumagalli [Italie] ; Radoslaw Lenarczyk [Pologne] ; Antonio Hernandez Madrid [Espagne] ; Torben Bjerregaard Larsen [Danemark] ; Elena Sciarrafia [Suède] ; Milos Taborsky [République tchèque] ; Roland Richard Tilz [Allemagne] ; Paolo Pieragnoli [Italie] ; Andrzej Przybylski [Pologne] ; Nikolaos Dagres [Allemagne]

Source :

RBID : pubmed:29300970

Descripteurs français

English descriptors

Abstract

The purpose of this patient survey was to analyse the knowledge, experiences, and attitudes regarding cardiac implantable electronic devices (CIED) in patients with pacemakers, implantable cardioverter-defibrillators (ICDs), or cardiac resynchronization devices. Of the 1644 patients with CIEDs from seven European countries, 88% were over 50 years of age. Most patients (90%) knew what device they were implanted with and felt sufficiently informed about the indications for therapy. As many as 42% of patients needed additional information on the battery replacement and limitations in physical activity. The self-reported incidence of complications was 9%, and among these, a quarter of the respondents felt insufficiently informed about the possibility of complications and their management. The majority of patients (83%) were followed by face-to-face visits, which was the most commonly preferred follow-up strategy by the patients. Nearly 75% of the patients reported improved quality of life after device implantation, but about 40% had worries about their device. Less than 20% had discussed with their physician or thought about device handling in the end-of-life circumstances or end-stage disease. Notably, almost 20% of the ICD patients did not wish to answer the question regarding what they wanted to be done with their ICD in case of end-stage disease, indicating the challenges in approaching these issues.

DOI: 10.1093/europace/eux365
PubMed: 29300970


Affiliations:


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Le document en format XML

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<name sortKey="Dagres, Nikolaos" sort="Dagres, Nikolaos" uniqKey="Dagres N" first="Nikolaos" last="Dagres">Nikolaos Dagres</name>
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<title level="j">Europace : European pacing, arrhythmias, and cardiac electrophysiology : journal of the working groups on cardiac pacing, arrhythmias, and cardiac cellular electrophysiology of the European Society of Cardiology</title>
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<term>Adaptation, Psychological (MeSH)</term>
<term>Aged (MeSH)</term>
<term>Cardiac Resynchronization Therapy Devices (MeSH)</term>
<term>Cost of Illness (MeSH)</term>
<term>Defibrillators, Implantable (MeSH)</term>
<term>Europe (MeSH)</term>
<term>Female (MeSH)</term>
<term>Health Care Surveys (MeSH)</term>
<term>Health Knowledge, Attitudes, Practice (MeSH)</term>
<term>Heart Diseases (physiopathology)</term>
<term>Heart Diseases (psychology)</term>
<term>Heart Diseases (therapy)</term>
<term>Humans (MeSH)</term>
<term>Male (MeSH)</term>
<term>Middle Aged (MeSH)</term>
<term>Pacemaker, Artificial (MeSH)</term>
<term>Patient Education as Topic (MeSH)</term>
<term>Patient Preference (MeSH)</term>
<term>Patients (psychology)</term>
<term>Prospective Studies (MeSH)</term>
<term>Prosthesis Failure (MeSH)</term>
<term>Quality of Life (MeSH)</term>
</keywords>
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<term>Adaptation psychologique (MeSH)</term>
<term>Adulte d'âge moyen (MeSH)</term>
<term>Cardiopathies (physiopathologie)</term>
<term>Cardiopathies (psychologie)</term>
<term>Cardiopathies (thérapie)</term>
<term>Connaissances, attitudes et pratiques en santé (MeSH)</term>
<term>Coûts indirects de la maladie (MeSH)</term>
<term>Dispositifs de resynchronisation cardiaque (MeSH)</term>
<term>Défaillance de prothèse (MeSH)</term>
<term>Défibrillateurs implantables (MeSH)</term>
<term>Enquêtes sur les soins de santé (MeSH)</term>
<term>Europe (MeSH)</term>
<term>Femelle (MeSH)</term>
<term>Humains (MeSH)</term>
<term>Mâle (MeSH)</term>
<term>Pacemaker (MeSH)</term>
<term>Patients (psychologie)</term>
<term>Préférence des patients (MeSH)</term>
<term>Qualité de vie (MeSH)</term>
<term>Sujet âgé (MeSH)</term>
<term>Éducation du patient comme sujet (MeSH)</term>
<term>Études prospectives (MeSH)</term>
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<term>Cardiopathies</term>
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<term>Cardiopathies</term>
<term>Patients</term>
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<term>Heart Diseases</term>
<term>Patients</term>
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<term>Heart Diseases</term>
</keywords>
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<term>Cardiopathies</term>
</keywords>
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<term>Adaptation, Psychological</term>
<term>Aged</term>
<term>Cardiac Resynchronization Therapy Devices</term>
<term>Cost of Illness</term>
<term>Defibrillators, Implantable</term>
<term>Europe</term>
<term>Female</term>
<term>Health Care Surveys</term>
<term>Health Knowledge, Attitudes, Practice</term>
<term>Humans</term>
<term>Male</term>
<term>Middle Aged</term>
<term>Pacemaker, Artificial</term>
<term>Patient Education as Topic</term>
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<term>Coûts indirects de la maladie</term>
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<term>Défibrillateurs implantables</term>
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<div type="abstract" xml:lang="en">The purpose of this patient survey was to analyse the knowledge, experiences, and attitudes regarding cardiac implantable electronic devices (CIED) in patients with pacemakers, implantable cardioverter-defibrillators (ICDs), or cardiac resynchronization devices. Of the 1644 patients with CIEDs from seven European countries, 88% were over 50 years of age. Most patients (90%) knew what device they were implanted with and felt sufficiently informed about the indications for therapy. As many as 42% of patients needed additional information on the battery replacement and limitations in physical activity. The self-reported incidence of complications was 9%, and among these, a quarter of the respondents felt insufficiently informed about the possibility of complications and their management. The majority of patients (83%) were followed by face-to-face visits, which was the most commonly preferred follow-up strategy by the patients. Nearly 75% of the patients reported improved quality of life after device implantation, but about 40% had worries about their device. Less than 20% had discussed with their physician or thought about device handling in the end-of-life circumstances or end-stage disease. Notably, almost 20% of the ICD patients did not wish to answer the question regarding what they wanted to be done with their ICD in case of end-stage disease, indicating the challenges in approaching these issues.</div>
</front>
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<DateCompleted>
<Year>2018</Year>
<Month>11</Month>
<Day>26</Day>
</DateCompleted>
<DateRevised>
<Year>2018</Year>
<Month>11</Month>
<Day>26</Day>
</DateRevised>
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<Journal>
<ISSN IssnType="Electronic">1532-2092</ISSN>
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<Volume>20</Volume>
<Issue>2</Issue>
<PubDate>
<Year>2018</Year>
<Month>02</Month>
<Day>01</Day>
</PubDate>
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<Title>Europace : European pacing, arrhythmias, and cardiac electrophysiology : journal of the working groups on cardiac pacing, arrhythmias, and cardiac cellular electrophysiology of the European Society of Cardiology</Title>
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<ArticleTitle>Patients' knowledge and attitudes regarding living with implantable electronic devices: results of a multicentre, multinational patient survey conducted by the European Heart Rhythm Association.</ArticleTitle>
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<MedlinePgn>386-391</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.1093/europace/eux365</ELocationID>
<Abstract>
<AbstractText>The purpose of this patient survey was to analyse the knowledge, experiences, and attitudes regarding cardiac implantable electronic devices (CIED) in patients with pacemakers, implantable cardioverter-defibrillators (ICDs), or cardiac resynchronization devices. Of the 1644 patients with CIEDs from seven European countries, 88% were over 50 years of age. Most patients (90%) knew what device they were implanted with and felt sufficiently informed about the indications for therapy. As many as 42% of patients needed additional information on the battery replacement and limitations in physical activity. The self-reported incidence of complications was 9%, and among these, a quarter of the respondents felt insufficiently informed about the possibility of complications and their management. The majority of patients (83%) were followed by face-to-face visits, which was the most commonly preferred follow-up strategy by the patients. Nearly 75% of the patients reported improved quality of life after device implantation, but about 40% had worries about their device. Less than 20% had discussed with their physician or thought about device handling in the end-of-life circumstances or end-stage disease. Notably, almost 20% of the ICD patients did not wish to answer the question regarding what they wanted to be done with their ICD in case of end-stage disease, indicating the challenges in approaching these issues.</AbstractText>
<CopyrightInformation>Published on behalf of the European Society of Cardiology. All rights reserved. © The Author(s) 2017. For permissions, please email: journals.permissions@oup.com.</CopyrightInformation>
</Abstract>
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<LastName>Haugaa</LastName>
<ForeName>Kristina Hermann</ForeName>
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<Affiliation>Department of Cardiology and Institute for Surgical Research, Center for Cardiological Innovation, Oslo University Hospital, Rikshospitalet, Oslo, Norway.</Affiliation>
</AffiliationInfo>
<AffiliationInfo>
<Affiliation>Institute for Clinical Medicine, University of Oslo, Oslo, Norway.</Affiliation>
</AffiliationInfo>
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<LastName>Potpara</LastName>
<ForeName>Tatjana S</ForeName>
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<Affiliation>School of Medicine, University of Belgrade, Belgrade, Serbia.</Affiliation>
</AffiliationInfo>
<AffiliationInfo>
<Affiliation>Cardiology Clinic, Clinical Centre of Serbia, Serbia.</Affiliation>
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<Affiliation>Department of Cardiology, Congenital Heart Disease and Electrotherapy, Silesian Medical University, Silesian Centre for Heart Diseases, Zabrze, Poland.</Affiliation>
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<Affiliation>Department of Cardiology, Thrombosis & Drug Research Unit, Aalborg University Hospital, Aalborg, Denmark.</Affiliation>
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<LastName>Sciarrafia</LastName>
<ForeName>Elena</ForeName>
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<Affiliation>Department of Cardiology, Institution of Medical Science, Uppsala University, Uppsala, Sweden.</Affiliation>
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<Affiliation>Department of Internal Medicine I-Cardiology, Palacký University Olomouc, Olomouc, Czech Republic.</Affiliation>
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<Affiliation>University Heart Center Lübeck, Medical Clinic II (Cardiology/Angiology/Intensive Care Medicine), University Hospital Schleswig-Holstein, Ratzeburger Allee 160, 23538 Lübeck, Germany.</Affiliation>
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<Affiliation>Unità di Aritmologia, Dipartimento Cardiotoracovascolare, University of Florence, Florence, Italy.</Affiliation>
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<Affiliation>Head of the Department of Cardiology, KSW 2, Rzeszów, Poland.</Affiliation>
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<AffiliationInfo>
<Affiliation>Faculty of Medicine, University of Rzeszów, Rzeszów, Poland.</Affiliation>
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<LastName>Dagres</LastName>
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